We thought our little Bertie was just daydreaming then our worlds fell apart – he’s only 4 but we’re slowly losing him

EMILEE Joe Napier’s world fell apart when her little boy was diagnosed with one of the world’s rarest brain disorders. Bertie Grant-Roberts was only a few months old when his parents noticed he was constantly daydreaming, and wouldn’t smile or laugh. The tot was eventually diagnosed with Beta-propeller protein-associated neurodegeneration (BPAN). As few as 500…